Sleep apnea

Leslie Schrader Admin Zipperhead Posts: 161	Sleep apnea Jan 20, 2013 22:12:08 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Leslie Schrader on Jan 20, 2013 22:12:08 GMT -5 Anyone else have this issue? It drives me insane. I don't think I will ever sleep normal again
	~~ Decompressed 11/30/11~~ Also diagnosed with sleep apnea.

Jill Admin Zipperhead Posts: 164	Sleep apnea Jan 21, 2013 7:27:30 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Jill on Jan 21, 2013 7:27:30 GMT -5 I have had issues if I fall asleep on my back. I'll wake myself up gasping for air. I trained my self to only sleep on my sides ans haven't had any further issues. Must be tough to deal with.
	Decompressed 6/1/12

Leslie Schrader
Admin Zipperhead

Posts: 161

Sleep apnea Jan 21, 2013 10:36:27 GMT -5

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Post by Leslie Schrader on Jan 21, 2013 10:36:27 GMT -5

It's a complete pain in the ass to deal with. That thing attached to my head drives me insane, if it blows just right on something, it sounds like I'm in a hurricane and it wakes me up. I tried the full face mask and could only use it for 5 minutes. I couldn't keep a seal with it and then it LOOKED like I was in the hurricane with my hair blowing all over the place. Then we see if bipap is better for me and my doc thinks Bipap is kicking me into central apnea, so off to the third sleep study next month. grr

~~ Decompressed 11/30/11~~
Also diagnosed with sleep apnea.

Teresa
New Zipperhead

Posts: 18

Sleep apnea Jan 25, 2013 22:39:29 GMT -5

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Post by Teresa on Jan 25, 2013 22:39:29 GMT -5

I was diagnosed with central apnea when I was 11 (before they had any idea about my Chiari), but it's gone away as I've gotten older. I'm extremely lucky. The CPAP was the worst... it made me choke so I ripped it off in my sleep every night.

~ Decompressed 12/10/12 ~

Donna Junior Zipper Posts: 69	Sleep apnea Jan 26, 2013 0:48:15 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Donna on Jan 26, 2013 0:48:15 GMT -5 I have sleep apnea too! I hate my CPAP mask. I think since my shunt surgery I actually sleep better without it. I dream now and never did before cause I never hit REM sleep.
	Decompressed 03/08/12 CSF leak repair 04/12 Shunt surgery 11/20/12 POTS Sleep Apnea

Jill Admin Zipperhead Posts: 164	Sleep apnea Jan 26, 2013 8:13:25 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Jill on Jan 26, 2013 8:13:25 GMT -5 That's great Donna! That's fascinating that your shunt surgery maybe had something to do with it.
	Decompressed 6/1/12

Leslie Schrader
Admin Zipperhead

Posts: 161

Sleep apnea Jan 26, 2013 9:54:54 GMT -5

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Post by Leslie Schrader on Jan 26, 2013 9:54:54 GMT -5

omg, Donna. I can't imagine life without dreams! I have to have a THIRD sleep study done next month because CPAP doesn't seem to be working, yet when I did the BIPAP trial, it was even worse. My doc thinks the BIPAP was knocking me into central episodes.

Tree - it went away? How cool is that! I know if I could get my weight back down, mine would get better, but, it's the viscious cycle - moving is what gets the energy going, yet, there is no energy to move in the first place...

~~ Decompressed 11/30/11~~
Also diagnosed with sleep apnea.

Donna Junior Zipper Posts: 69	Sleep apnea Jan 26, 2013 12:27:38 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Donna on Jan 26, 2013 12:27:38 GMT -5 When my sleep study was done I have 52 hypoepneas and hour, I stop breathing 10 times and when my body tries to get into REM I stop breathing 30 times.
	Decompressed 03/08/12 CSF leak repair 04/12 Shunt surgery 11/20/12 POTS Sleep Apnea

Leslie Schrader Admin Zipperhead Posts: 161	Sleep apnea Jan 26, 2013 12:42:12 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Leslie Schrader on Jan 26, 2013 12:42:12 GMT -5 Wow. I can't remember how many times I stopped breathing but it was a lot. I have my papers here someplace, but I am too lazy to get up and get them just now. haha
	~~ Decompressed 11/30/11~~ Also diagnosed with sleep apnea.

Donna
Junior Zipper

Posts: 69

Sleep apnea Jan 26, 2013 12:50:13 GMT -5

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Post by Donna on Jan 26, 2013 12:50:13 GMT -5

Hypoepnea is shallow breathing to the point you don't get enough oxygen, my O2 levels drop to around 82% in my sleep. Every surgery I have had they have put me on oxygen at the rate of 3 to push it into me during the after surgery time in the hospital.

Decompressed 03/08/12
CSF leak repair 04/12
Shunt surgery 11/20/12
POTS
Sleep Apnea

Leslie Schrader Admin Zipperhead Posts: 161	Sleep apnea Jan 26, 2013 13:00:15 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Leslie Schrader on Jan 26, 2013 13:00:15 GMT -5 Ooh. now that you mention it, my O2s were in the 60% range.
	~~ Decompressed 11/30/11~~ Also diagnosed with sleep apnea.

Donna Junior Zipper Posts: 69	Sleep apnea Jan 26, 2013 13:02:46 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Donna on Jan 26, 2013 13:02:46 GMT -5 Hence how most chiarians die in their sleep.
	Decompressed 03/08/12 CSF leak repair 04/12 Shunt surgery 11/20/12 POTS Sleep Apnea

Jill Admin Zipperhead Posts: 164	Sleep apnea Jan 26, 2013 13:04:19 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Jill on Jan 26, 2013 13:04:19 GMT -5 Yikes...
	Decompressed 6/1/12

Leslie Schrader Admin Zipperhead Posts: 161	Sleep apnea Jan 26, 2013 13:33:14 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Leslie Schrader on Jan 26, 2013 13:33:14 GMT -5 I wouldn't even dream of NOT using my CPAP on a night I have been drinking, especially if I have drank a lot.
	~~ Decompressed 11/30/11~~ Also diagnosed with sleep apnea.

Donna Junior Zipper Posts: 69	Sleep apnea Jan 26, 2013 20:20:55 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Donna on Jan 26, 2013 20:20:55 GMT -5 I haven't had a drink since New Years and it was the first in three yrs. Thanks Chiari!!!!
	Decompressed 03/08/12 CSF leak repair 04/12 Shunt surgery 11/20/12 POTS Sleep Apnea

Teresa: Some days are better than others. I felt great the first couple weeks after surgery and then felt like I was taking steps backwards. Jan 28, 2013 17:38:08 GMT -5

Teresa: I'm still pushing through it for the most part. Yesterday I spent the day running around and then went on a date with my boyfriend. Probably another reason I feel so rotten today, but it was worth it. Jan 28, 2013 17:42:56 GMT -5

Jill: I think you have to push yourself a bit...to see where it goes. And if it was worth it, you probably didn't do too much. You rested today.

Jan 28, 2013 17:44:48 GMT -5